One Thing ☝️

♿ Accessibility: Listen to this piece read aloud:

Did you know that all the best ME/CFS researchers in the world - for example, every single researcher at Ron’s recent Working Group Meeting - every researcher there said they don’t care if they are the ones to discover the cure for ME/CFS, they just want a cure to be found to end our suffering. That is unheard of in scientific research or in any field of study - even in the arts. *No other illness* has a group of researchers with this attitude. We may not (we definitely don’t) have the funding we need for them to do everything they want to do and need to do to find a cure as fast as they are able to and as fast as is possible and as fast as we need, but we have an incredible team of people who are putting our lives ahead of their own careers and their own well being. Every single day. For years. And they are some of the most brilliant minds in all of science.

Something to be grateful for in this mess of god-awful, infuriating, wretched, unjust, rigged-to-fail, fucked up, backwards, twisted, mind fucking, dehumanizing, soul-crushing, relentless, nightmare, bullshit of an illness.

Love, Whitney 💙

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❓What is ME/CFS? https://www.whitneydafoe.com/mecfs/whatismecfs
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